Talking to your Care Team

Your Care Team is there to help you. But to get the most from your Care Team, it's best to be prepared. When you go and see a member of your Care Team, it helps to take someone with you who can also ask questions and listen to what is said, so you can discuss it later. It is also helpful to:

• Make a list of the things you want to discuss, with the most important at the top
• Keep a diary. A diary of your symptoms and how you are managing them will help you describe your experiences to your doctor or other member of the Care Team. The more information they have, the better they can help you and make sure you have the right treatment
• Ask for a longer appointment. Most appointments with a doctor can be quite short. If you have several problems to discuss, it may be best to ask for a longer appointment or to talk to the Parkinson's disease Nurse Specialist or other member of the Care Team. They may be able to answer some of your concerns
• Be honest. Many people feel they have to put on a brave face and show how well they are coping when the reality may be quite different. Your doctor or other specialist can only help you if they really know what is happening
• Ask questions. If you don't understand something, ask your doctor or other specialist to repeat it and make sure you understand before you leave the surgery. Take notes if you think it will help you remember. Try not to be afraid to ask about things that embarrass you
• Keep informed. The more you understand about Parkinson's disease, the better you will be able to cope and be involved in decisions about your care