Caregiver Viewpoint

Family and friends who look after someone with Parkinson's disease are key members of the Care Team at home. Anyone who is diagnosed with Parkinson's disease needs the love and support of those who care about them. They need help to understand and come to terms with their diagnosis and treatment and, in time, they will need practical help with everyday activities.

It is important to look after yourself as well as the person you are caring for. You also need time to take in and adapt to what is happening. You need to stay well and keep up with the things you enjoy and the people you know and who care about you. So don't ignore your needs.

These are some tips that other carers have found helpful:

• Finding out about Parkinson's disease will help you understand how the symptoms progress and how medication can affect them
• Discussing what is happening with the person who has Parkinson's disease will help prevent misunderstandings and look after your relationship, so you each know how the other is feeling
• Encourage independence. Your roles may change now and in the future, and it will take time to get used to them. But try not to take over, and offer support rather than too much advice and practical help
• Talking about how you feel with family and friends, a professional counsellor or therapist or with others who care for people with Parkinson's disease can be helpful. Joining a local support group may help you to get emotional support or information
• Check out what other practical help and support is available from members of the Care Team
• Thinking about the future will help you plan ahead, together. In the early stages, your life may not be affected but later on, you may have to make changes and adapt. Knowing about housing, finances, employment and other practical issues may make you less anxious now and prepare you for possible future decisions